Study highlights the importance of lived experience provided by prisoners

Credit: CC0 Public Domain

What is unique about the study is the combination of interviews with current and former people in prison, custodial professionals, and healthcare providers to identify and understand barriers in delivering high-quality healthcare and support to those in custody. In addition, researchers gathered data on the number, types and stages of cancers diagnosed in patients within prisons.

Moving forward, the researchers believe that findings from this study will help inform prison cancer care policy and develop priorities for improving it within the prison system. The research was funded by the National Institute for Health Research (NIHR), the research partner of the NHS, and .

Jo Armes, Reader in Cancer Care and Lead for Digital Health at the University of Surrey, who led the interviews with patients and professionals, said: "People in prison have a right to receive the equivalent standard of care as they would in the community. It is very unclear whether this is the case due to the current systems of reporting.

"Not only is the increasing, but the demographic is getting older, with implications for heightened risk of developing cancer. Appropriate strategies must be in place so those in custody can be diagnosed early and access care promptly, which will also ensure effective and efficient use of NHS resources."

Professor Jo Rycroft-Malone, Director of the NIHR's Health Services and Delivery Research Programme, which funded the study, said: "This is an important area of research, and the first of its kind to investigate cancer care within English prisons, including the types and stages of the disease and the treatments available for prisoners.

"A key feature of this study is patient and public involvement—one of NIHR's key values—with former prisoners involved in and working as 'lived experience researchers', interviewing patients and professionals.

"This study aims to meet gaps in evidence in this area, and hopefully its findings will help improve the quality, accessibility and organisation of services for patients and assist clinicians and professionals working in prisons."

Pavan Dhaliwal, Chief Executive of Revolving Doors Agency, said: "People in contact with the criminal justice system often experience significant health inequalities—a higher burden of disease and less access to . Addressing the health needs of this population can contribute to reducing inequalities in wider society.

"We are pleased to provide the lived-experience insight to this important work. People with lived- experience will bring unique perspectives, and this will, we hope, go a long way towards transforming healthcare services in prison."

Further results of the main study described in the paper will be published later in the year.

More information: Renske Visser et al, Collaboration with people with lived experience of prison: reflections on researching cancer care in custodial settings, Research Involvement and Engagement (2021). DOI: 10.1186/s40900-021-00284-z

Citation: Study highlights the importance of lived experience provided by prisoners (2021, June 29) retrieved 13 June 2024 from
This document is subject to copyright. Apart from any fair dealing for the purpose of private study or research, no part may be reproduced without the written permission. The content is provided for information purposes only.

Explore further

Removing Medicare exclusion would improve prisoner health


Feedback to editors