Today, the Interactive Autism Network (IAN), the nation's largest online autism research project, reveals the preliminary results of the first major survey on wandering and elopement among individuals with autism spectrum disorders (ASD), and announces the launch of a new research survey on the association between pregnancy factors and ASD. The wandering and elopement survey found that approximately half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.
"This survey is the first research effort to scientifically validate that elopement is a critical safety issue for the autism community," said Dr. Paul Law, Director of the IAN Project at the Kennedy Krieger Institute in Baltimore, Maryland. "We hope that advocates and policy makers use this research to implement key safety measures to support these families and keep these children safe."
In just three weeks, more than 800 parents of children with autism completed the survey. The findings highlighted below summarize the compelling results and crucial safety concerns identified by parents. To read the preliminary findings in their entirety, visit http://www.iancommunity.org/cs/ian_research_reports/ian_research_report_elopement.
Dangers of Elopement
The tendency of individuals with ASD to wander or "bolt" puts them at risk of trauma, injury or even death:
- More than one third of children who elope are never or rarely able to communicate their name, address, or phone number verbally or by writing/typing
- Two in three parents report their missing children had a "close call" with a traffic injury
- 32% of parents report a "close call" with a possible drowning
- Wandering was ranked among the most stressful ASD behaviors by 58% of parents of elopers
- 62% of families of children who elope were prevented from attending/enjoying activities outside the home due to fear of wandering
- 40% of parents had suffered sleep disruption due to fear of elopement
- Children with ASD are eight times more likely to elope between the ages of 7 and 10 than their typically-developing siblings
- Half of families with elopers report they had never received advice or guidance about elopement from a professional
- Only 19% had received such support from a psychologist or mental health professional
- Only 14% had received guidance from their pediatrician or another physician
Despite speculation that summer is the peak season for elopement, 67% of parents of elopers said they saw no seasonal pattern at all; only 25% felt summer was the peak season. The top 5 reasons parents believed their children eloped included:
- Enjoys exploring (54%)
- Heads for a favorite place (36%)
- Escapes demands/anxieties (33%)
- Pursues special topic (31%)
- Escapes sensory discomfort (27%)
This research was funded by the Autism Research Institute, Autism Science Foundation, Autism Speaks and Global Autism Collaboration.
Pregnancy and Birth Questionnaire
The IAN Project also announces today the launch of a new research survey to explore the association between potential pregnancy- and birth-related factors and ASD. The research initiative will explore:
- Use of fertility treatments
- Pregnancy complications
- Illness or infection during pregnancy
- Medications taken during pregnancy
- Number of ultrasounds
- Induction of labor and birth complications
Comparisons between children with ASD and typical siblings are crucial to this research, so the IAN Project needs information on pregnancies and births of both children with ASD and their siblings. Survey participants must be U.S. residents enrolled in the IAN project (to register, visit www.ianresearch.org) and the birth mother of a child with an ASD who is between the ages of 0-17.
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More information: www.ianproject.org