Health registry could transform chronic kidney disease care

Nov 04, 2010

A registry of health care information on patients with mild to moderate chronic kidney disease (CKD) could help physicians improve care for affected individuals, according to a study appearing in an upcoming issue of the Clinical Journal of the American Society Nephrology (CJASN). The results suggest that officials could use such a registry to develop a national surveillance system to identify and track various aspects of CKD.

The incidence and health care costs of CKD are growing. A national reporting system that collects health care details on dialysis patients and kidney patients across the United States has helped clinicians and researchers identify ways to improve advanced kidney disease patients' quality of care. No such nationwide database exists for patients with mild to moderate stages of CKD who do not yet require dialysis.

Sankar Navaneethan, MD (Cleveland Clinic) and his colleagues recently developed a kidney disease registry at the Cleveland Clinic based on electronic health care records that could serve as a model for the rest of the country.

The registry at the Cleveland Clinic houses information on the demographics, medical conditions, laboratory details, medications, and other characteristics of 57,276 CKD patients. The investigators verified the information collected in the registry and noted that it is reliable for helping physicians follow the course of disease in patients as they progress from early to later stages of CKD. The registry could also help clinicians evaluate the effectiveness of various treatment strategies in these patients. "This registry, which will interface with other national registries, is uniquely designed to track the management of CKD over the entire care spectrum, ranging from the environment to therapy with dialysis or transplantation," said Dr. Navaneethan.

Explore further: US Ebola labs, parts for clinic arrive in Liberia

More information: The article, entitled "Development and Validation of an Electronic Health Record–Based Chronic Kidney Disease Registry," will appear online on November 4, 2010, doi:10.2215/CJN.04230510

add to favorites email to friend print save as pdf

Related Stories

Low thyroid function common in chronic kidney disease

Jun 11, 2008

Many patients with chronic kidney disease (CKD) have mild reductions in thyroid function, or subclinical hypothyroidism—a condition that becomes more common as kidney function declines, according to a study in the September ...

End of life care falls short for kidney disease patients

Jan 15, 2010

Patients with advanced chronic kidney disease (CKD) often do not receive adequate end-of-life care and are unhappy with the medical decisions made as their conditions worsen, according to a study appearing in an upcoming ...

Younger doctors recommend kidney transplantations earlier

Oct 29, 2009

Compared with veteran doctors, recent medical school graduates are more likely to refer chronic kidney disease (CKD) patients for kidney transplantation before their patients require dialysis, according to a paper being presented ...

Heart test found safe for pre-transplant kidney patients

Oct 15, 2009

A screening test that measures whether a patient's heart is healthy enough for a kidney transplant is not as dangerous as once thought, according to a study appearing in an upcoming issue of the Clinical Journal of the Am ...

Recommended for you

Africa's uneven health care becomes easy prey for Ebola

2 hours ago

The disparity in African countries' ability to fight Ebola has left the continent fighting an uneven struggle against a disease that doesn't respect borders—yet relatively simple measures could help, experts say.

Ebola case stokes concerns for Liberians in Texas

3 hours ago

The first case of Ebola diagnosed in the U.S. has been confirmed in a man who recently traveled from Liberia to Dallas, sending chills through the area's West African community whose leaders urged caution ...

Is Australia prepared for Ebola?

6 hours ago

Australia needs to be proactive about potential disease outbreaks like Ebola and establish a national centre for disease control.

Dallas hospital confirms first Ebola case in US

12 hours ago

A patient at a Dallas hospital has tested positive for Ebola, the first case of the disease to be diagnosed in the United States, federal health officials announced Tuesday.

User comments : 0